A protocol, that's all is our Mantra.

The Arachnoid Cyst Foundation was begun for the children suffering from this horrific disease and their parents accepting what they heard. I was one of those children.

I am a patient advocate. I need help.

YOU MUST GET a spinal tap by a reputiable doctor because your brain has anywhere from 10-100% WHICH IS HORRIFIC.

It is a travisty of life to bring a child into this environment to have it feel its nervous system dying from 2mm-12" due to the thin layer, one film on the sub-arachnoid space keeps nutrition from getting and waste leaving. My last neurosurgeon ALSO thinks it's a horrificly bad idea to allow children to suffer. There is no cure and this kids can have the pressure removed but there will always be a hole on their soul. If you have the "choice" and you TRULY LOVE your child you WILL NOT WATCH them grow into developing diseases like Syringomyelia, Empty Sella Syndrome, MS, eventually can lead to more undiscovered funner CNS diseases! If you never had to know about neurosurgeons or watching your child go paralyzed why endanger its life when one day it asks you, "If you knew, why did you have me?"

This disease is a long term, degenerative, systemic CNS "syndrome" with no cure, no education, no eradication since they can't tear into Pia Mater (the root of the CNS).

Please contact Christopher Duma for further information for the life he gives.

This site is being renovated but our cause is pure and true.

you can get a new heart but the brain needs different attention.

Please help in our plight to change the minds and hearts.