For your entertainment:
My name Catherine Clay and I do my BEST to run this site with the help of my CTO, Kristof, then Glenanswers letters, has answers from being a medic in the Gulf War and keeps Secret(ary) (shunted 7cm back side with Chiari). Miss Wendy is my frontal lobe. It has been the longest running site helping people cope with the tradgy of dealing with life POST and PRE surgery.
YOU MUST ALWAYS CHECK YOUR DOCTOR AND GET SEVERAL OPINIONS! FIND OTHER PATIENTS WITH SUCCESS STORIES AND FAILURES WHERE YOU. ONE OPINION IS NOT ENOUGH TO LET SOMEONE TAKE YOU LIFE INTO THEIR HANDS ONCE BUT TWO, THREE, FOUR...
Before calling, please read through the site so when we talk you won't be blindsided by what I have to say. I try to make things light and not everyone shares my sense of humor. I think I am going to have to make this site sanatized and corporate... no I can't. It's not fair to YOU
It's finally time. I have to dump the bad-ass site I I worked on for almost a DECADE which was made just for sufferers and after hearing "change your site" and it has FINALLY dawned on me that it doesn't help the kids that tell their moms they want to die as early as 3. Symptom #2. Physological.
I am learning what is toxic in my life and dumping that waste and WOW you can't imagine. I would love to share that with the kids so they don't grow up hoding onto wierd things that ends up hurting them as they age because our brains NEVER really stop even when we sleep.
So some things are broken that will get fixed soon and you will be getting a really boring corporate site and save the original in another spot.
I used to heavily recommend The Skull Base Institute but after too many other people having their cysts come back because they do but re-charging the patients when they come back for a tune up and he KNOWS that it keeps coming back It makes me wonder so I am no longer recommending this place until more data is given.
And I'm going to start working on a site for us to find doctors so lots of hammering around.
Clinical Modification (ICD-9-CM 793.0) Arachnoid cyst (definition of arachnoid cysts)
If you want to see an AC surgery procedure then click here. It was done in Oz and Lance's cyst is back.
It's an ongoing battle. I get several new letters a week from people always telling me their doctors say "it's all in your head." Perhaps you receive a phone call from you physician dismissing your cyst as nothing. Perhaps you were born with it (click to read my favorite article). Perhaps you got it from a car accident or a soccer ball.
"They" tell you there is nothing wrong with you but you are tired, your back hurts, your neck is stiff and your body aches and you have moods swings that would put Linda Blair to shame.
Don't kid yourself. You really have something in your brain that is causing you to have inexplicable problems. You need a team of specialists that will help treat your problems and not dismiss them as your imagination. They will often tell you to see a psychiatrist that there is nothing wrong but that's because they are ignorant and don't understand what it's like to live with a rare neurological disorder with no known cure, very little treatment and not enough information.
If you find ANY information on this site that has benefited you please donate at least $10. I found new info to print out for your doc so if you want access... hand over some bucks! I take the time to put this site together and give you info.
This site is NOT to take the place of medical advice but to show you that you are not alone, call me so I can give you emotional support and do my best to advise you as to how to navigate living with your brand new brain tumor, YEAH! There are things your Dr. isn't studying, reading, learning because he just is too lazy, misinformed or thinks that the medical gods that wrote the book on how to have a "benign" brain tumor are correct so s/he can go back to making money on people dying from cancer. Luck of the draw. If you are located in some cities you can find treatment however...
